I can't believe I forgot to write about this, so sorry Wendy! The Wendy to whom I am referring is the lovely Wendy Mitchell who blogs at which me am I today? and her book 'Somebody I Used to Know' has just been published.
If you look on the right side of my blog you'll see her having a chat with me before the launch of Join Dementia Research (JDR). She is a truly lovely lady and a shining beacon of hope for people in a similar situation as her with early-onset Alzheimer's. She was 58 at the time of diagnosis in 2014 and she was determined to carry on with as near normal a life as possible whilst acknowledging the restrictions her conditions imposed upon her. In her words "I want to do something now - I don't want to just sit here and wait for this disease to make its march on my mind".
The book has received excellent reviews in the newspapers but when the Alzheimer's Society posted details on Facebook I noticed there were some negative comments, such as 'there's no good side to having dementia", ironically because she is so optimistic. I see both sides.
Having spoken with a lot of people with early-onset Alzheimer's they all say that they have to stay positive otherwise they'd just give up and I fully understand that. It was speaking with Wendy that made me very aware of the words I use when talking about dementia. People told me that they hated the expression "suffering from dementia", which I used to say when talking about my mum, because they don't want to feel like victims. I respect that and now say that she "lived with dementia" which at least makes people feel that they still have some control over their condition.
Wendy says "Dementia can be a lonely world to live in" and notes "people assume you can't participate". I think she serves as a shining example of how you can still have a good quality of life whilst dealing with the restrictions the condition imposes upon her. Well done lovely lady.
A Brace of Ultras
I'm really short of time at the moment so I'll just leave this photo here with a few words:
On Saturday it was cold, it rained and I got wet whilst running 31.5 miles but got that massive silver medal. On Sunday it was bitterly cold, there was a biting wind and there was a bit of 'snail' (that's my description of a combination of sleet and hail which pounded onto my head!) and I ran 29 miles and got the Music Legends medal on the left.
When I booked these events I could have run today too but chose to take a day of rest and to run tomorrow instead. Today, whilst cold and a bit blowy, is lovely and bright but the forecast for tomorrow is RAIN. Deep joy!
They were marathons 139 & 140.
A Quick Show of Carbeth
|It took a few days to dry|
|I used Mel's clever idea of inserting a plate in the collar to keep it a good shape|
I made this specifically to be worn over this dress which is a favourite I wear for speaking opportunities for Alzheimer's Research UK when worn with a jacket but I wanted something less formal as an alternative.
Right, that's it for now as I need to prepare for another ultra tomorrow.
|I have about 4" of positive ease and it sits nicely above my waist.|
|It does sit away from my back like Kate's model does but I couldn't show it because when I lifted my arms out of the way it moved towards my waist!|
|I love the whole thing and am really pleased with how the neckline sits. I may have to make another in purple........|