Extreme Knitting Redhead: Busy as a bee!

Monday, March 10, 2014

Busy as a bee!

The sun has finally shown her face and the rain has abated and it feels as if the whole country has heaved a sigh of relief.

Bee on Rosemary blossom, central London

Honey bee on Ballota leaf, our garden

It isn't just the bees who've been busy, oh no, I've been rather busy too. There's been running, speaking, fund-raising, gardening, crafting (knitting, crochet and sewing) and yet again I have remarked that there aren't enough hours in the day.

I have so many lovely photos to upload that I will keep this first post very short and leave you with a short clip of an interview I did on BBC Radio 5 Live last week. It was following the announcement that the wonderful Prunella Scales has a form of dementia and the station contacted ARUK to ask if they could speak to someone about it. Just fast forward to around 37 minutes here.

There is some very exciting news to share too but you'll just have to wait for that!

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Mum's Story

In 1997 my mother, then aged 81, had a series of minor strokes. Shortly after that we started to notice behavioural changes notably memory loss and confusion over everyday items. We thought it was just old age finally catching up with her. Then she started wandering and had violent mood swings. Although she already lived with us it became obvious that she couldn't be left alone for long and so I left my job to care for her. The next few years saw a gradual decline into the blackness that is 'vascular dementia'. My normally placid mum became violent and aggressive. She had psychotic incidents where she would see imaginary people (children hiding in her wardrobe, Russians sitting on the stairs, women stealing her clothes) and she would shout at them and sometimes throw things too. She was so convincing that we used to go and check that there wasn't anyone there! When my sister died mum did not know who Judy was or that she was her daughter. There came a point when I suddenly realised she no longer knew that I was her daughter and this was a terrible time for me. In the last 2 years that she lived with us, life for us all became almost unbearable as she needed 24 hour care - she couldn't be left alone at all because she would either wander off or hurt herself, she never slept for more than 30 minutes at a time during the night, she became incontinent and incapable of doing anything for herself. Finally my husband and I realised that we could no longer provide her with the care that she needed and she went to live in a special care home where the team did a splendid job caring for her in the last few months of her life. There she lived a zombified existence unaware of who she was, what she was or where she was. It was heartbreaking. She died in March 2005, the day after her 89th birthday.

Thank you for taking the time to read mum's story and I hope you'll dig deep and sponsor me using the link below to help find a way of beating this destructive disease.